Researchers ยท research-secondary-data
Accessing health data for research
How to request access to health data for scientific research
EHDS basis
Chapter IV โ permitted purposes for secondary use
- Art. 53
Workflow
- State the research question
- Build a cohort definition in EHRBase
-
Run feasibility
in EHRBase
Counts only โ no record-level data.
-
See the opt-out effect
The cohort shrinks.
-
Small-cell suppression
A count of 3 is itself disclosive.
Sandbox applications used
EHRBase
openEHR clinical data repository (JVM)
https://cdr.sandbox.ehds.technicise.eu/
Rogmukti
openEHR clinical data repository (Django)
https://rogmukti.sandbox.ehds.technicise.eu/
Scenario research-secondary-data from the
EHDS Regulation Explorer (MIT).