EHDS Sandbox

Citizens & Patients · citizen-opt-out

Opting out of secondary data use

I want to prevent my health data being used for research

Try it in the sandbox

EHDS basis

Chapter IV — secondary use opt-out and its exceptions

Workflow

  1. Exercise the opt-out in PHR (my record)

    The switch, in my PHR; the identity side is Keycloak.

  2. Run the same research query in EHRBase

    Switch to the researcher view.

  3. Watch the count change

    The opted-out patient drops out.

  4. See an exception

    Opt-out is not absolute — and that matters.

Sandbox applications used

PHR (my record)

The citizen's personal health record: access, consent, opt-out, proxies, requests

https://phr.sandbox.ehds.technicise.eu/

Keycloak

Identity and access management

https://auth.sandbox.ehds.technicise.eu/

EHRBase

openEHR clinical data repository (JVM)

https://cdr.sandbox.ehds.technicise.eu/

Scenario citizen-opt-out from the EHDS Regulation Explorer (MIT).